Autism & Asperger's Community
🏠 Portal home 💬 Community forum 🧠 Community tab 🗨 IRC (#asperger) 🔗 Resources ∞ NT 4.0-style portal: long-form articles on diagnosis, sensory life, work, relationships, and self-advocacy, plus one-click access to the autistic-led forum and low-pressure IRC. Built for clarity: plain language, predictable layout, literal-friendly copy, and no autoplay. The forum uses the same discussion software as the main desktop with calmer colours and community-specific boards (including masking, burnout, welcome, and resources).

Resources & Recommendations

Curated Resource Library

All resources have been chosen with a focus on **autistic-led** and **neurodiversity-affirming** content. We prioritise voices of autistic people themselves over clinical or parent-focused perspectives.

Autistic-Led Organisations

International Organisations

  • **ASAN** — Autistic Self Advocacy Network (USA) — https://autisticadvocacy.org
  • **Autistic UK** — https://autisticuk.org
  • **AMASE** — Autistic Mutual Aid Society Edinburgh — https://amase.org.uk
  • **I CAN Network** — Autistic-led mentoring (Australia) — https://icannetwork.com.au
  • **Autism Network International (ANI)** — https://www.autreat.com
  • **Neurodivergent Activism** — grassroots autistic advocacy
  • **AASPIRE** — Academic Autistic Spectrum Partnership in Research and Education — https://aaspire.org

Organisations to Approach with Caution

  • **Autism Speaks** — widely criticised by autistic community for cure-focused rhetoric, minimal autistic leadership, and historically harmful campaigns
  • **Any organisation** that uses puzzle piece imagery, talks about "curing" autism, or does not have autistic people in leadership positions

Books

By Autistic Authors

  • **"Unmasking Autism"** — Devon Price (2022) — essential reading on masking, burnout, and authenticity
  • **"Neurotribes"** — Steve Silberman (2015) — definitive history of autism and neurodiversity
  • **"The Reason I Jump"** — Naoki Higashida (2007) — non-speaking autistic perspective
  • **"Thinking in Pictures"** — Temple Grandin (1995) — visual thinking and autism
  • **"Pretending to be Normal"** — Liane Holliday Willey (1999) — Asperger's memoir
  • **"Loud Hands: Autistic People, Speaking"** — Julia Bascom, ed. (2012)
  • **"Divergent Mind"** — Jenara Nerenberg (2020) — neurodivergent women
  • **"The Electricity of Every Living Thing"** — Katherine May (2018) — late diagnosis memoir
  • **"Camouflage"** — Sarah Bargiela (2019) — graphic novel about autistic women
  • **"Spectrum Women"** — Barb Cook & Michelle Garnett (2018)
  • **"I Overcame My Autism and All I Got Was This Lousy Anxiety Disorder"** — Sarah Kurchak (2020)
  • **"Sincerely, Your Autistic Child"** — ASAN (2021) — advice from autistic adults to parents

Research and Academic

  • **"Is This Autism?"** — Donna Henderson et al. (2023) — modern diagnostic understanding
  • **"Women and Girls with Autism Spectrum Disorder"** — Sarah Hendrickx (2015)
  • **"NeuroTribes"** — Steve Silberman (2015)
  • **"In a Different Key"** — John Donvan & Caren Zucker (2016) — autism history
  • **"Uniquely Human"** — Barry Prizant (2015) — strengths-based approach

Podcasts

Recommended Podcasts

  • **"The Autistic Culture Podcast"** — exploring autistic culture and identity
  • **"Autism in the Adult"** — practical advice for autistic adults
  • **"1800 Seconds on Autism"** — BBC podcast featuring autistic voices
  • **"Actually Autistic AF"** — raw, honest autistic perspectives
  • **"The Neurodivergent Woman"** — focus on women and AFAB experiences
  • **"Autistic Masking"** — deep dive into masking and unmasking
  • **"NeuroClastic"** — autism through an autistic lens
  • **"Squarepeg Podcast"** — neurodivergent families
  • **"Spectrumly Speaking"** — autistic women's experiences

YouTube Channels

Recommended Channels

  • **Purple Ella** — autistic woman, late-diagnosed, UK based
  • **Yo Samdy Sam** — autistic woman, informative and personal
  • **Paige Layle** — young autistic advocate, educational
  • **IndieAndy** — autistic man, adult diagnosis journey
  • **Aspergers from the Inside** — Paul Micallef, practical strategies
  • **The Aspie World** — Dan, covering all aspects of autistic life
  • **Invisible i** — Katy Amesbury, autistic woman creator
  • **Autism from the Inside** — Paul Micallef, deep dives
  • **I'm Autistic, Now What?** — educational content

Online Communities

Where to Connect

  • **r/autism** — Reddit, general autism community
  • **r/AutisticAdults** — Reddit, adults only
  • **r/aspergirls** — Reddit, women/AFAB focus
  • **r/aspergers** — Reddit, Asperger's identification
  • **r/AutisticPride** — Reddit, celebration and advocacy
  • **Wrong Planet** — https://wrongplanet.net — longstanding forum
  • **Autism Forums** — https://www.autismforums.com
  • **#ActuallyAutistic** — hashtag on social media for autistic voices
  • **Mastodon** — growing autistic community on the fediverse
  • **Discord** — search "autistic adults" for multiple servers

Screening & Assessment Tools

Online Screening (Not Diagnostic)

These tools can indicate whether further assessment may be worthwhile. They do not replace professional diagnosis.

  • **AQ-10** — Autism Quotient 10-item screening
  • **AQ-50** — full Autism Quotient (Baron-Cohen et al.)
  • **RAADS-R** — Ritvo Autism Asperger Diagnostic Scale-Revised
  • **CAT-Q** — Camouflaging Autistic Traits Questionnaire
  • **Aspie Quiz** — https://rdos.net/eng/Aspie-quiz.php
  • **Embrace Autism** — https://embrace-autism.com — comprehensive online tests with interpretation

Important Notes on Assessment

  • **Self-diagnosis is valid** — barriers to formal diagnosis are real (cost, wait times, bias)
  • Formal diagnosis is **not required** to identify as autistic
  • Assessment should be conducted by someone experienced with **adults** and **women**
  • A good assessor will ask about your **entire life**, not just current presentation
  • Bring evidence — school reports, diaries, family observations
  • Some people bring a "trait list" document — this is helpful, not "cheating"

Crisis and Support Lines

Emergency Resources

  • **International**: Befrienders Worldwide — https://befrienders.org
  • **UK**: Samaritans — 116 123 (free, 24/7)
  • **UK**: National Autistic Society — 0808 800 4104
  • **USA**: 988 Suicide & Crisis Lifeline — call or text 988
  • **USA**: Crisis Text Line — text HOME to 741741
  • **Australia**: Lifeline — 13 11 14
  • **Canada**: 988 Suicide Crisis Helpline
  • **New Zealand**: Lifeline — 0800 543 354
  • **Ireland**: Samaritans — 116 123
  • **South Africa**: SADAG — 0800 567 567

Research and Science

Key Research Sources

  • **SPARK** — Simons Foundation Powering Autism Research — https://sparkforautism.org
  • **Autism CRC** — Cooperative Research Centre (Australia) — https://www.autismcrc.com.au
  • **AASPIRE** — participatory research with autistic co-researchers
  • **PubMed** — search for autism research — https://pubmed.ncbi.nlm.nih.gov
  • **Google Scholar** — academic papers on autism — https://scholar.google.com
  • **Autism journal** — peer-reviewed research — SAGE Publications
∞ NT 4.0-style portal: long-form articles on diagnosis, sensory life, work, relationships, and self-advocacy, plus one-click access to the autistic-led forum and low-pressure IRC. Built for clarity: plain language, predictable layout, literal-friendly copy, and no autoplay. The forum uses the same discussion software as the main desktop with calmer colours and community-specific boards (including masking, burnout, welcome, and resources).
NT 4.0-style portal: long-form articles on diagnosis, sensory life, work, relationships, and self-advocacy, plus one-click access to the autistic-led forum and low-pressure IRC. Built for clarity: plain language, predictable layout, literal-friendly copy, and no autoplay. The forum uses the same discussion software as the main desktop with calmer colours and community-specific boards (including masking, burnout, welcome, and resources).
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